Support for carers who look after those with MND is an important part of what we do and we are proud to be playing a role in Carers Week 2016.
In 2015 we undertook a survey of carers to gather more information on what it is like to care for someone with MND. We found that over half of carers spend more than 100 hours per week caring so clearly the challenges of caring for someone with MND cannot be underestimated.
In the same survey, 38% of respondents said they were unaware of their right to a Carers Assessment. We believe this is an unacceptably high number and we need to work hard collectively to ensure carers understand what support is there for them.
Through our communications with carers and the caring section of our website we try to drive awareness of rights, whether it is the right to a carers assessment or benefits and allowances. In addition we seek to provide information and support for carers who are part of our MND family.
Steve Bell, Director of Care (North) at the MND Association said:
“Support for Carers has been a key theme throughout the last year for the Association and will continue to be so as we develop our services for carers. In the last few months we have launched our Carers grant scheme and more recently, we have reviewed and re-launched our guide Caring and MND: support for you. We are pleased to continue to support Carers Week in 2016.”
About the MND Association
The Motor Neurone Disease Association is the only national charity in England, Wales and Northern Ireland focused on MND care, research and campaigning.
We are a membership organisation with over 9,000 members forming a powerful national and local network that provides information and support alongside fighting for improved services.
We have over 7,000 active volunteers in England, Wales and Northern Ireland and around 170 paid staff, all dedicated to improving the lives of people affected by MND, now and in the future.
Our vision is a world free from MND.