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MND Association

Support for carers who look after those with motor neurone disease (MND) is an important part of what we do at the MND Association and we are proud to be playing a role in Carers Week 2018.

In our most recent survey of carers and people living with MND we gathered information on what it is like to care for someone with MND. We found that more than half of unpaid carers spend over fifty hours a week caring for a person with MND. This is more hours than an average full time employee, so clearly the challenges of caring for someone with MND cannot be underestimated.

Perhaps more alarmingly, in the same survey, less than a third of unpaid carers said they have taken any planned breaks, even for as short as two hours.

Steve Bell, Deputy Director of Care at the MND Association said:

“Through our communications with carers and the caring section of our website we try to raise awareness of rights, whether it is the right to a carers assessment or benefits and allowances. In addition we seek to provide information and support for carers who are part of our MND family.

“We are engaging with Government and holding them to account in the development of a carer’s action plan to improve the support available to unpaid carers. The MND Association also offers grants to carers to improve their quality of life.”

About MND

Motor neurone disease (MND) is a fatal, rapidly progressing neurological condition affecting up to 5,000 adults in the UK at any one time. The disease causes messages from nerves (motor neurones) in the brain and spinal cord that control movement to gradually stop reaching the muscles, leading them to weaken, stiffen and waste. The result is that people become locked in a failing body, unable to move, talk and eventually breathe.

Some may experience changes in thinking and behaviour, with a proportion experiencing a rare form of dementia. MND kills a third of people within a year and more than half within two years of diagnosis.

Today six people will be diagnosed and six will die from MND. There is no cure.

About the MND Association

The Motor Neurone Disease Association is the only national charity in England, Wales and Northern Ireland focused on MND care, research and campaigning.

We are a membership organisation with over 9,000 members forming a powerful national and local network that provides information and support alongside fighting for improved services.

We have over 7,000 active volunteers in England, Wales and Northern Ireland and around 190 paid staff, all dedicated to improving the lives of people affected by MND, now and in the future.

Our vision is a world free from MND.

Carers Week 2018

These organisations joined together to make Carers Week happen in 2018

  • logo01
  • Carers UK new logo
  • image description
  • independent age
  • MacMillan Logo
  • MSS-logo-orange partnersrow
  • MND logo
  • Which later life care logo

Proudly supported by:

  • Nutricia


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