Motor neurone disease (MND) is a fatal neurological condition
The MND Association:
- Funds research
- Supports patients carers and professionals and
- Campaigns for better care.
We have high quality information and resources for people with MND and their carers and families. This includes our comprehensive, award winning Carers Guide. The website area dedicated to carers can be found here.
Our young people’s hub, with information designed specifically for those aged 4-10 and 11- 18, can be found here.
Our MND Connect helpline is available Monday to Friday between 9am - 5pm and 7pm - 10:30pm. Call 0808 802 6262 or email firstname.lastname@example.org
We offer grants to help the main carer to take a break from their caring duties. This may be a pamper day, a short break or assistance towards pursuing a hobby and can be applied for up to 12 months post bereavement. We also offer a young person’s grant to help support purchases of anything that may help them in their day-to-day life eg, buying a laptop or going on a school trip. For information about all grants, click here.
We provide a range of local support including Association Visitors and a network of branches and groups. Information about our services can be found here.
We campaign and raise awareness so the needs of people with MND and everyone who cares for them are recognised and addressed by the wider society.
Nick Goldup, Director of Care Improvement says:
"During the pandemic the Association reached out to its membership – within two weeks of the first lock down we launched new ways of working, redeployed staff and volunteers to contact every person with MND on the database to provide much-needed support. We tailored our response to identified need. Amongst other initiatives an emergency COVID grant was set up, and between April and December we made 168 of these grants totalling £39,987. We established virtual carer meetings and 1,634 participants attended these events supported by 406 volunteers between June – December. I am proud of our response, and we will continue to support people affected by MND and their carers and families."